
I took a class a long while back, through Chapman University taught at Hartnell College, I even forget the title- somehow on how language shapes our lives. We focused on the political in this class. The Politics of Language, that might have even been the course title. I learned a lot and read enough to understand that if you control the definition of a term, say of "The American Dream" or "mother" then you control the dialog. If you control the narrative then what happens is the issues revolve around in the universe of your making. The implications are enormous, and this isn't stunning revelation to us in a more savvy world now, and it has driven the Republican party for the thirty years I've been watching. Anyway in that course I was taught by a Jesuit. And I introduced him to Noam Chomsky among other writers. I could see the class as paralleling other things I'd read. He asked in one class if we thought it was democratic for a minority voice to be forever voted down. He had very solid ways to defend that perception-he was essentially asking if democracy was fair.
Having experienced that in a grade level now in the most real and simple and least sophisticated way possible in terms of my voice, I can answer now I better understand what he was asking. And why. I've often written here "who writes history?" but that is really my recognition and thoughts on power, on those without voice, on how we elevate and promote -often based on violence, ignorance, the interplay of things that seem less educated but more about mass power, through resource allocation other structures at odds with values we state.
But it was a good enough question I've thought about it for years.
I just heard Stockman on Bill Maher talking about minority group politics using this narrative control tool-controlling the narrative-because he was evoking the codes that these special interests somehow
hurt us all trying to secure wages, minimum wages and rights for say, immigrant workers or a group in a minority that have been hurt by lacking jobs, opportunity and access to power. When this group denied access to power or resources figured out ways to react-the label of special interest came into being for them-to denigrate them. He neglects to see the wealthy as such a special interest of its own.
However, mostly I have been thinking about that tired narrative of special interest politics that was generated to obfuscate from things like what I just heard on another program.
People that are very poor statistically in America don't live as long. Fundamental things that appear to be strengthened in the last few years of securing a permanent underclass. That should be intolerable.
Narratives are ways we explain things, or code things, so that a group can "group think."
They are powerful tools and an amazing human capacity. We transmit culture, values, meaning through this. But like anything this same process has a positive and a negative capacity. Nothing exists that isn't both at the same time.
In my mind this ought to be what critical thought for students is about. Understanding we can step outside and look at what we narrate, what we define, what our meanings are about. The most frustrating part of test based educating is it requires that no time is dedicated in questioning the ethics of what we are doing.
Because that is very dangerous frankly to forget we have responsibilities to question ourselves and why we do what we do, and this can be very hurtful. How to examine what we tell ourselves and why is an important thing to talk about with students. I would imagine training as an ethnographer, anthropologist, cultural anthropologist, linguist so on would assist in gaining tools to approach what we say and why. To gain perspective. Students can look at a story such as one by Steinbeck looking at it from many lenses-historical, social, American, so on.
I've just experienced something that I'm adjusting to regarding the narrative
we tell ourselves, far different than on a political level
, and within family. My immediate family.
When I write here often it is to look at what I say, examine why, move out of one frame into another around my teaching, my evolution as a person.
It is a growth tool. I'd like to explain a way I make meaning. As I demonstrate my narrative.
My mother- I've recently told here- has been very ill. I also shared (in the last week or so over Spring Break) she had an event years ago that changed profoundly both my mom's and my life- when a voice in her head, among other things, took on huge implications for us.
At the same time that happened I recognized my Mother was creating meaning, explaining it to herself and others-searching for help, understanding, compassion. Her story. She changed in what seemed like a day I blinked my eyes, that sent her to a hospital, uninsured, and what I saw the next day was her slurring speech, face odd, eye odd, unbalanced and talking of a voice telling her things she identified as someone we both knew trying to take her over. For her this person was in her head and hurting her. Over time as she recovered, or to some extent recovered, she expanded this narrative. The voice.
I would argue it with her, a mistake I cannot retract now, but I accepted a psychiatrist saying it was schzophrenia.
But he was actually wrong. And if I knew where he was now I'd make sure he understood that and what his mistake meant.
Not to be mean, but because that error hurt my mother.
And so was she altered.
However her narrative, her processing of things that happened or unfolded from what she knew, she explained. It was impossible really for her to get to information to change this or to help her-and in a day she became so different. But now we have figured out something profound about it all.
It has rather profound meaning for me and is an exemplar of something I would call "a revelation."
A few years ago too Mom had an event. Maybe 6 or 7 years ago. She began to vomit for days, lost her speech, had a frozen face, lost the use of arm, lost hearing, lost balance. So damaged. It happened at a Spring Break after I'd been in a surgery and I missed really what might have been things leading up to it. She was under a lot of stress. Brain scans did not reveal it til the third time they did them, with some kind of contrast-it showed a lesion in her brain stem. So we knew it was a brain stem stroke-and that was all.
Over time since she has had what I've called TIA's-events that left her arm hanging, face hanging, eye not working with two occurring in the last week. But this time I saw her in the middle of it, a bad one, as her voice returned she reported that the voice was telling her it was paralyzing her, and other things. It was if I was transported back in time to about 1979. This wasn't explaining the event after the fact by blaming it on this person she thinks she hears-she was having auditory hallucinations.
My daughter who is trained in neuroscience shared some info with me yesterday, as she has been taking a course in pre-med on the brain.
Here it is.
So I recalled to her how in a few hour time years ago Mom (I thought) invented this voice and was forever changed. In reality Mom
had a stroke or some brain event then. Same facial issues, same balance issues, same vomiting.
By talking to my daughter with her using her training I better understood the location of this stroke-which we have on MRI from a few years back- and what we might see. What we do see.
I have argued with a raging Mom, part of this, felt the sheer weight of trying to talk out of her the notion a guy was doing this to her. Her fixations, her story her logic. What I now understand, see is the whole of it. I see differently. In another system entirely.
Mom gave blood a bit before this all happened in the 1970's. She was out at the University Hospital in Morgantown with someone doing something, and saw a sign begging for blood donations. She weighed 110- which was too small- but they allowed her to donate. I was at work and I had no idea she was there or doing this. I would have been 17 or 18. When she went to get the bus home, she required 2 bus changes, she passed out as she stepped off the curb hitting the base of her head. She was out a long while, hour, and kept overnight for a lot of tests. The bus driver got her help. As I recall I had no idea until the next morning where she was-something that never happened. It wasn't like today. No cell phones.
And then this event a short month or so later happened profoundly altering her. This was in a time MRI's didn't exist. They never even took into consideration a stroke, I know that, but Mom went to the hospital I am told that day, while I was at work, demanding a CAT scan to see this other person in her head, what was actually auditory hallicinations. She could not tell about the distortion in her speech, in her sense of time, in her word finding, balance, in the way her arm was working.
So, now I understand.
Differently. I have also got to face my YEARS of thinking it was something different than what it was.
Recently she developed -as I did, as did my daughter -severe infection. I think it might have been meningitis. But my daughter had a severe ear infection and headaches and could not work for over a month. She resigned a job because she did not know what to do. She hasn't missed a day of school in junior high, high school, college. She never misses days or calls in. But a month in bed. Deathly ill, stiff neck, just ill. My mom had a terrible infection in jaw, head, her jaw locked, she could not eat for a month. She said her head and neck had pressure and pain. She said her head was so sore she couldn't touch it. My mother never complains about anything. (My other daughter calls this inner cranial pressure.)
And this was treated, finally, with several antibiotics. Ghastly long siege- and it may yet kill her. During it and in the last weeks she's had repeated TIA's-events.
As I said.
And I'm listening to how my Mom talks, lumps on her head, shooting pain in her skull, neck stiff if she hangs up shirts on a hook putting her head back. It's really tough because she goes into these reconstructions or the doctor said, confabulations. It's this guy we once knew who was once my boss and friend.
I think it was then, when the doctor said maybe all of this, even way back was a stroke that I related differently to all of it-that I had insight.
I know where she had the stroke is where auditory hallucinations occur. Brain stem.
Even her deafness which happened immediately after two of these TIA events a few years ago. Even that my daughter could attribute this to the brain stem. So I had to just take in a massive shift in perception. My God.
My first reaction was compassion.
This enormous wave of feeling for her facing in her 50's a stroke or brain event. I have insight into profound change neurologically from my syrnix, and from my back when I lost walking.
But I felt her bravery of facing it -sans any health coverage-Dad made sure he screwed my mother when he "moved on" with a grad student. I just felt that finally I could never argue again that people can't take over your mind-I had another way to think. No point in arguing. It isn't a thing like this.
So I went out to her room and calmly told her.
It's not like she said, "Epiphany." In fact I think she didn't listen too much, kept organizing her thousands of recipes snipped from newspapers. But I went over what my daughter concluded. And I kept at it awhile and repeated. I think for thirty years I've longed to be able to give her a satisfactory reason for ANY of this. I could now.
I don't know if it will alter her narrative but I felt a wave of her feeling the validation of being understood. I explained auditory hallucinations as defined in this literature, and I told her Sylvia would come talk to her more. Later Sylvia said that maybe on an unconscious level she has sought to explain her grandma because for weeks she's been very intently focused on the brainstem. Maybe.
I can't place here how I have lived this, lived her kookie explanations, tried to understand, but I can say that this made more sense if you will. A new narrative took over my being. I suppose it's like lining up the big bang, creation myths for other cultures, Biblical explanation about our origins. Things exist within contexts. But this notion that the reason it happened in a day was due to something occurring in the brain stem-I wonder if from that fall-that had never been revealed to me.
And then it has been.
My mother insisted on control. She insisted on her version of what was happening. I mostly reacted, tried to plead with her to think that as far as we know someone wasn't taking her over, so on. But in doing that-reacting to her narrative
I was inside of it. I neglected then looking at the other issues, slurring speech, balance. I'd have thoughts like-why is she saying her vision and eye isn't under her control. I have the reasoning to think of a stroke or MS or something, but it was her insistence on that control and her role as my mother and my age that interfered with my doing so-for 30 years!. When she said the hospital made her slur her speech I accepted that. From someone being irrational! Looking back I'll give over I did not know what a stroke might manifest or look like, in these other ways- but I never researched it. In fact until these last few years it did not occur to me to do so.
My mistake was in allowing her to define the narrative.
We live lessons. One that I have to understand is that we are designed to create "story" or explanations for what we experience. But they can be as wrong as this was.
As wrong as thinking that a crow stole the sun to bring to the people. This functioned for my Mom but it also hurt her. It illustrates for me how we need the capacity to take in other perspectives. We need critical minds and the ability to question ourselves on our most fundamental beliefs.
I think somehow that has vast implications for me in my life.
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